A Nigerian woman with a genetic disorder that reflects on her skin has shared what she faces in church during the ‘sign of peace.’
Eseoghene Susan Oghenekevwe is living with neurofibromatosis. It is a genetic disorder that cause noncancerous tumors to grow along the nervous system, skin, and bones.
According to Susan, who is a Catholic, whenever she’s in church and it’s time for members to offer each other the sign of peace by shaking their neighbours’ hands, people avoid shaking her hand.
Narrating her experience, she wrote on Facebook: ‘When I first started posting pictures on Facebook, I hardly posted my pictures without editing.
‘I always had to edit because so many people are frustrated online. So many people are not happy and here I am posting pictures when I’m trying to be happy, only for someone to bring their unhappiness to stain my white.
‘You can imagine how frustrating that can be sometimes.
‘So, I hardly post pictures.
‘When I got married, I still didn’t post much, but my husband kept posting me.
‘He was like, I can’t hide you. I have to post my wife now.
‘He would post and I would still be there editing my pictures. If someone wants to see my real picture, they just go to my husband’s profile.
‘Because on my own profile, na edited pictures you go see.
‘But recently, I started posting little by little.
‘Sometimes my husband would just tell me, “Why can’t you just share your story about this skin tag.
‘And honestly, I’m beginning to understand what he meant.’
